The latest news, prior to the forthcoming festivities break:


  • A good percentage of the Portal pages is already on-line, but as it is mentioned in the December 2012 Editoriala   considerable amount of time is spent for revision purposes not only in terms of text but in terms of graphics as well. For the period till the end of December please expect some formatting issues .. since we are setting things right !!!


  • We have a good visualization of the Portal on Mobile devices (landscape mode on phones of course, both modes for tablets). 


  • Due to time restrictions we have decided to update the PowerPoint presentations, White papers and Editorials in the first trimester of 2013.


  • New information (i.e. material not present in the old site) will be available from January 5th 2013





We can report that the new Portal implementation has entered in stage Beta 3. The January 2013 deadline is still valid but we are considering publishing a part of the material and updating the site gradually.



The program for the face-lifting of the site is on schedule but we are facing delays with material related to our sponsors, therefore a realistic date for the "revamped" material should be in early January 2013. If you have a COMMENT to make on something you would like to see in the new site please tell us , or leave a message in the FORUM area.


There is an announcement for the International Conference on Neonatal Screening, thic coming November : The invitation text goes like this :
In Europe, approximately 5 million newborns are screened yearly based on the drawing of a drop of blood from an infant's heel or from a dorsal hand vein. European policies around newborn screening are challenges by various policy controversies, including questions to what degree newborn screening panels should be expanded, to what degree informed consent of parents should be obtained, how carrier status results should managed, and how storage and research use should be dealt with.

   Continuing on the experiences of various projects, the University of Leuven (Belgium) and the VU University Medical Centre Amsterdam (The Netherlands) are organizing on 19 November 2012 the international conference 'Newborn Screening: Challenges for Europe' in Brussels.
A flyer on the conference is available on following website:
The conference has received the kind support of the Flemish Agency for Care and Health (Flanders, Belgium) and the Centre for Genomics and the Life Sciences (the Netherlands).
Participation is free, but registration is required before 12 November through following website:
We are looking forward to meet you in Brussels in November.
Kind regards,

Prof. Pascal Borry (University of Leuven)
Prof. Martina Cornel (VU University Medical Center Amsterdam)